Disability Perspectives on Paid Leave

This project includes ground-breaking qualitative research about how workers with disabilities and working caregivers of people with disabilities and serious health conditions use, need, and benefit from family and medical leave. People with disabilities and their families often experience greater financial insecurity and are more likely to face barriers to employment that can render the financial impact of time off particularly devastating. This project explores whether current employer- or government-provided paid and unpaid leave policies and programs meet the needs of the disability community. Findings offer key insights on how existing leave policies can become more disability-inclusive and specific actions employers, policymakers, and advocates can take to support workers affected by disabilities and serious health conditions.  Most importantly, the findings highlight the need for a comprehensive national paid leave policy. This project was supported by an anonymous funder through The Arc of United States

Project Publications 

Project Staff 

Suma Setty, MPH, Senior Research Associate 

Heather Koball, PhD, Co-Director 

Seth Hartig, MA, Senior Research Associate 


Suma Setty